Thursday, January 7, 2010


We are officially cutting back on therapies for Roa.  This month, we are taking a break from Courage Center PT sessions.  We will continue to take Roa to Independent Swim sessions on our own at Courage 1-2 times a week.  It will be nice for Mom to have a break from the drive to Stillwater during this cold wintry month.

Roa will continue to have home-based OT, PT, and Craniosacral therapies one day each week.  We will also continue to go to ECFE class weekly so Roa can have play time with other kids and teacher time with Pat.  Roa has been going into the HBOT chamber 4-5 nights a week with Daddy.  Tuesdays and Fridays will be Mom therapy time!  I am excited to have a couple days to work with Roa on my own and actually follow through with therapist recommendations.

Roa has been eating more solids and eating less from the breast! YEAH!  He still prefers purees and is gaggy with solids and textures, but we are moving along!
Because of the increase in solids and the bedtime help from Dr. Garcia, sleep specialist, Roa has actually slept THROUGH THE NIGHT 2 nights in a row this past week!  YIPPEE!  I actually felt sore and achey when I woke up at 4:00am and he was still asleep.  I haven't had more than 4 hours in a row for 2 years!  We think that Kim's Craniosacral session and the HBOT has also impacted Roa's sleeping in a positive way.
Another fun update, Roa is tolerating more time on his tummy and reaching out with his arm while in a tummy time position.  This is great for increased neck, head, trunk and arm control.

I talked with Laurie, OT and case manager about Roa's evaluation for speech therapy.  We are looking at that starting in possibly Feb.

And we march on to tomorrow.....


  1. Congratulations on the sleep! Oh how I hope we get there soon. Does Dr. Garcia have any tips you could share? I didnt realize our sons are only 4 days apart. They are very similar in mobility, eating, sleeping, etc. I enjoy visiting your blog to see what Roa is up to. I cant wait to get Henry in a walker/gait trainer. He is so determined to move just like Roa. I'm sure you and Roa will both enjoy the extra Mommy time. Priceless. :)

  2. PS. I love the songs you've added here. Beautiful and touching.

  3. Hey Janet! I hope you get to read this. I've never tried to comment on my own blog.
    How cool is it that Henry and Roa are so close in age and skill! We need to connect more!
    Dr. Garcia suggested we move Roa's bed time back 1/2 hour each week for a series of 3 weeks until his period of "Hard sleep" last longer into our night.Then move it back up in 15 minute segments until we find a good bedtime for him that gives us more sleep. We went through some pretty cranky nights trying to keep him up, but overall it seemed to work. Roa now goes down between 8:30-8:45 and sleeps peacefully until 1:30ish. That give me a good 3-4 hours in a row!

  4. Thanks for the tips and please feel free to email when you have time. I'd love to compare notes. jrepitt @ hotmail . com


Mom and Me

Mom and Me