I have had a couple good friends and a sister email and ask for an update in the last two days, so thought I would take a brief moment in this busy day to share a bit. Thanks, you guys, for showing interest and caring!
Our doctor's appointment on Tuesday was overwhelming yet good. We met with the physiatrist who now will be working with us and Roa and talked about getting him seen at the Gillette Sleep Clinic to see if they can help Roa achieve better sleep patterns. We also discussed doing a trial of botox injections in a few portions of his body, hands and hamstrings that hinder his movement due to muscle tightness. We are in the process of being scheduled for those appts.
Roa had xrays taken of his hips and also was fit for new arm splints to aid with weightbearing and leg splints to stablize knees when learning to stand correctly and balanced.
We received Roa's urine analysis for the HBOT center and are looking at possible supplements that will calm the "hyperactivity" of his brain chemistry that might be causing his sleep issues.
Today we began with a new craniosacral therapist. I think she is a good match for Roa and we had some nice release of tension at the session. We also are heading to Courage Center for aquatic therapy this afternoon.
On Sunday, the Thayers will be hosting an Open House as a thank you to friends, family and Bryan's coworkers at API who supported us either financially or physically -by dog/house sitting throughout this last month. Hope you supporters out there recieved your invitation and can stop by for a personal thank you!
Celebrating the life and accomplishments of our little boy. God trusted us with one of his angels. It is our mission to help him learn to fly!
Friday, September 18, 2009
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Mom and Me
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2009
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September
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- Mystery solved
- Coffee and the Teletubbies
- Eat, Sleep, Pray
- Doctors, therapists, and teachers, oh my!
- Off to a busy week!
- Weeks update
- Long story short and repeated...
- Update after a break
- Fun at home
- Day 20- Last sessions!!!
- Day 18- New videos to share!
- Day 17- two more days/four more sessions to go!
- Day 17- My Husband, My Hero
- Day 17- Starting off strong
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September
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Thanks for the update Jennifer.
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