Saturday was our first official session with Ors and Conductive Education. Bryan and I were very happy with how Roa responded to it. Why did Rojo like it?
First of all, there is alot of singing... Scores Big points with King Roa! Also, Ors is such a nice guy and that accent of his really gets Roa's attention. I think it is also great to have a man involved with fun time work, besides Daddy.
Next positive is the steady pace, moving from one position to another in a neat orderly fashion. Everything we did from standing up to sitting down, from reaching to turning the head,...had a little transitional song. Once again,... King Roa got his music fix. Lastly, there were many tasks that involved a rhythmic beat- shakers, clapping,... Roa loved it all.
He got a little fussy when hungry, but the beauty of CE is that we also worked on feeding and positioning during mealtime. Every move we made, from snack table to the play area was goal centered on correct movement and positioning his body. As parents, it really makes you think about all of the teachable moments we need to take advantage of.
The only negative of our experience was the time and travel. It is about a 40 minute drive to the center. Add 40 minutes back and the 1 1/2 hour session and it was our whole day. This would be completely okay if Roa would sleep in the car, but he has never been a traveling sleeper. But he has mastered the skill of being a most CRANKY traveler! So, nap time was early and a cat nap was late so bed time was postponed and our night was HELL with frequent wake ups. We will take the good with the bad.
Monday, February 22, 2010
Tuesday, February 16, 2010
Free wheeling
Here is Roa's gait trainer action. It is the best taping of him on the go that I've filmed thus far. Since the taping, he has mastered getting over the bumps of the door frame and rugs. He even is handling some corners Also, I no longer have to yell at him like a crazy momma and stomp my feet to get him going. (I suggest the volume turned off while viewing!)
I Saw The Sign
The visit with the "functional neurologist" aka chiropractor studying for his Diplomate in Neurology, yesterday was quite a waste of our time. However, I needed to chat with him to rule it out... give it a good look... feel with my mommy's gut that he could not help our Roa.
The first sign-When you enter the one room therapy center and are greeted by the receptionist who instructs you to have a seat as she is so "busy", and you look around to see 2 employees chatting, 1 client waiting, and 1 client involved in some sort of therapeutic method involving a chair, headphones, and magazine.... you wonder why you are there to wait.
I had filled out their lengthy intake forms and watched their dry videos of the doctor speaking on the brain prior to our consultation meeting as strictly instructed. The receptionist made me sign additional forms while I juggled my active Roa and then... we waited... 20 minutes, as the doctor chatted with a client in his little office off the therapy room.
The two employees and the receptionist chattered away, pausing to watch me walk around the room, hunched over with King Roa kicking his ball. There were no toys or objects of interest for Roa to be seen.
2- Another "why am I here" sign.
When the doctor finally came to greet us, he shook my hand but gave just a glance to Roa. Sign number 3.
We went to his office and he preceded to ask, "So, what questions do you have for me?"
"Well, I'm curious and wanted to meet with you today to see if you could help my son. I saw your add in the paper, have been reading on the treatments of brain injury and so wanted to see what your program would look like for Roa." I stated.
Well, with cerebral palsy there is no cure. It is something that he will have to live with. There are many things we can do to work with him but it would take us being very persistent and aggressive...3 times a week.... and many off the things we can do here he is just to young for....yada yada yada... punch jab stab your heart...
He asked me if I was familiar with the works of Glenn Dowan and the IAHP.org, I told him, yes, I am reading their book on brain injury. He looked shocked and unbelieving and then went on to tell me that he follows their methods, but that they are hard on a family ...necessary follow through daily.... patterning.... incline plane for crawling.... yada yada yada... church involvement for support of methods.....hardship and possible divorce...
Man, does this guy know how to bring you down without selling his program ONE bit! HUGE FLASHING SIGN 4!
Funny thing, while Doctor Downer was lecturing away, Rojo was smiling up at him, drinking from his sippy cup and kicking his ball with me in tow around the tiny office space. Roa seemed to be laughing as if thinking, Why are we listening to THIS, Momma? We should be playing!
Final sign- we are outda here!
Brain based therapy, so very close to home, ruled out. Checked from list.
There are many people out there in our world whose method WILL work for you given this that and the other. I continue to sort, dig, pick and choose.
Meanwhile, Roa continues to smile, laugh, and kick his ball, with me in tow, all round the offices of "The Land of Know".
The first sign-When you enter the one room therapy center and are greeted by the receptionist who instructs you to have a seat as she is so "busy", and you look around to see 2 employees chatting, 1 client waiting, and 1 client involved in some sort of therapeutic method involving a chair, headphones, and magazine.... you wonder why you are there to wait.
I had filled out their lengthy intake forms and watched their dry videos of the doctor speaking on the brain prior to our consultation meeting as strictly instructed. The receptionist made me sign additional forms while I juggled my active Roa and then... we waited... 20 minutes, as the doctor chatted with a client in his little office off the therapy room.
The two employees and the receptionist chattered away, pausing to watch me walk around the room, hunched over with King Roa kicking his ball. There were no toys or objects of interest for Roa to be seen.
2- Another "why am I here" sign.
When the doctor finally came to greet us, he shook my hand but gave just a glance to Roa. Sign number 3.
We went to his office and he preceded to ask, "So, what questions do you have for me?"
"Well, I'm curious and wanted to meet with you today to see if you could help my son. I saw your add in the paper, have been reading on the treatments of brain injury and so wanted to see what your program would look like for Roa." I stated.
Well, with cerebral palsy there is no cure. It is something that he will have to live with. There are many things we can do to work with him but it would take us being very persistent and aggressive...3 times a week.... and many off the things we can do here he is just to young for....yada yada yada... punch jab stab your heart...
He asked me if I was familiar with the works of Glenn Dowan and the IAHP.org, I told him, yes, I am reading their book on brain injury. He looked shocked and unbelieving and then went on to tell me that he follows their methods, but that they are hard on a family ...necessary follow through daily.... patterning.... incline plane for crawling.... yada yada yada... church involvement for support of methods.....hardship and possible divorce...
Man, does this guy know how to bring you down without selling his program ONE bit! HUGE FLASHING SIGN 4!
Funny thing, while Doctor Downer was lecturing away, Rojo was smiling up at him, drinking from his sippy cup and kicking his ball with me in tow around the tiny office space. Roa seemed to be laughing as if thinking, Why are we listening to THIS, Momma? We should be playing!
Final sign- we are outda here!
Brain based therapy, so very close to home, ruled out. Checked from list.
There are many people out there in our world whose method WILL work for you given this that and the other. I continue to sort, dig, pick and choose.
Meanwhile, Roa continues to smile, laugh, and kick his ball, with me in tow, all round the offices of "The Land of Know".
Monday, February 15, 2010
The Land of Know...
I had a lengthy discussion with Roa's physical therapist, Mary, about his disheartening MRI results, therapy goals, and alternative therapy ideas. It felt good to share, bounce off ideas, cry, and vent to Mary. Mary has her doctorate in PT. She worked specifically with peds. to get her pediatric certificate. I value Mary's opinion and her experiences working with tots with motor delays.
We discussed in length Roa's struggles, my fears of the MRI results, our search for help for Roa.
Mary shared with me that MRIs are fairly new to the world of CP. She said in her 20+years, MRIs usually were performed if the child had concerns such as seizures. In one case, Mary worked with a little guy who was walking with a walker and talking before an MRI, performed due to onset of seizures, revealed that a large portion of the white matter in the left hemisphere of his brain just didn't exist. I NEEDED to hear a story like that!
Mary doesn't want us give up on traditional PT. She is highly motivated to get Roa walking. We want to do the very best for Roa and are pursuing all options in therapies. It makes for a busy schedule, but we will continue to go above and beyond for our boy.
So, our schedule looks as-
Sunday/ day off for church and family time
Monday/OT homebased and aquatic therapy with Dad at Courage Center
Tuesday/ Anat Baniel Method therapy homebased
Wednesday/ ECFE school group with EI teacher and afternoon Craniosacral therapy homebased
Thursday/PT homebased
Friday/ Momma therapy day! and Speech therapy once per month or PT at Courage Center once per month
Saturday/ Conductive Education group in at the Plus Center and aquatic therapy at Courage Center
--Three nights per week- Hyperbaric Oxygen Therapy homebased
**Chiropractic adjustment every 2 weeks with Dr. John
I have had such great response from parents and conductors in the world of Conductive Education. I am very intrigued. We are starting with a once a week trial of the program as recommended by Ors at the Plus Center. I will follow through with methods at home and see how it looks for Roa and we will go from there.
Today, Roa and I are off to the Upper Room Wellness, a center that offers Brain-Based Therapy for a variety of conditions including, Depression, ADHD, Autism and CP. This is just a consultation to see what ideas they have for a toddler with CP. Like most of my discoveries, they do not have alot of experience with someone as young as Roa, but are willing to check him out. Wish us luck!
Oh and.... check out the video of our boy on the move in his gait trainer. He is as happy as a clam to move on his own and be chased by Mom and Dad!
We discussed in length Roa's struggles, my fears of the MRI results, our search for help for Roa.
Mary shared with me that MRIs are fairly new to the world of CP. She said in her 20+years, MRIs usually were performed if the child had concerns such as seizures. In one case, Mary worked with a little guy who was walking with a walker and talking before an MRI, performed due to onset of seizures, revealed that a large portion of the white matter in the left hemisphere of his brain just didn't exist. I NEEDED to hear a story like that!
Mary doesn't want us give up on traditional PT. She is highly motivated to get Roa walking. We want to do the very best for Roa and are pursuing all options in therapies. It makes for a busy schedule, but we will continue to go above and beyond for our boy.
So, our schedule looks as-
Sunday/ day off for church and family time
Monday/OT homebased and aquatic therapy with Dad at Courage Center
Tuesday/ Anat Baniel Method therapy homebased
Wednesday/ ECFE school group with EI teacher and afternoon Craniosacral therapy homebased
Thursday/PT homebased
Friday/ Momma therapy day! and Speech therapy once per month or PT at Courage Center once per month
Saturday/ Conductive Education group in at the Plus Center and aquatic therapy at Courage Center
--Three nights per week- Hyperbaric Oxygen Therapy homebased
**Chiropractic adjustment every 2 weeks with Dr. John
I have had such great response from parents and conductors in the world of Conductive Education. I am very intrigued. We are starting with a once a week trial of the program as recommended by Ors at the Plus Center. I will follow through with methods at home and see how it looks for Roa and we will go from there.
Today, Roa and I are off to the Upper Room Wellness, a center that offers Brain-Based Therapy for a variety of conditions including, Depression, ADHD, Autism and CP. This is just a consultation to see what ideas they have for a toddler with CP. Like most of my discoveries, they do not have alot of experience with someone as young as Roa, but are willing to check him out. Wish us luck!
Oh and.... check out the video of our boy on the move in his gait trainer. He is as happy as a clam to move on his own and be chased by Mom and Dad!
Sunday, February 14, 2010
Saturday, February 13, 2010
Wednesday, February 10, 2010
Conductors Conductors Everywhere!
When checking my blog today I was surprised to have such a wonderful response from the world of Conductive Education. Conductors Unite! You great people really believe in your work and should be commended for that! Thank you for your insight on what I should read to help me better understand the theory of CE. Please keep in touch. I will take all the guidance on our journey I can get!
Our visit with Ors at the Plus Center went well. He is so very kind and Roa took to him with a smile immediately. Ors was impressed with Roa's "alertness" and drive to get walking. He watched Roa play on the mat, attempt to roll, sit on a foot bench, and stand holding a bar. He gave me some helpful tips about positioning Roa while walking with him and, like we here from the entire world, GET THAT BOY ON HIS TUMMY MORE! We are getting there!
Given the distance to Burnsville, it is a bit of a hike to do 2-3 days a week for Roa and I given our busy additional therapy schedule. Ors agreed to work with Roa on Saturday afternoons just to get us started. He would really like to get a group of toddlers together since one of the beliefs in Conductive E. is the group connection. So our search for toddlers with motor delays in the Twin Cities area begins!
If you are a parent of a 1-3 year old with CP or other motor impairment, consider joining this new therapeutic group! Just send me a message here or at jbthayer07@hotmail.com
Now, off to google a book mentioned to me entitled Dina...
Our visit with Ors at the Plus Center went well. He is so very kind and Roa took to him with a smile immediately. Ors was impressed with Roa's "alertness" and drive to get walking. He watched Roa play on the mat, attempt to roll, sit on a foot bench, and stand holding a bar. He gave me some helpful tips about positioning Roa while walking with him and, like we here from the entire world, GET THAT BOY ON HIS TUMMY MORE! We are getting there!
Given the distance to Burnsville, it is a bit of a hike to do 2-3 days a week for Roa and I given our busy additional therapy schedule. Ors agreed to work with Roa on Saturday afternoons just to get us started. He would really like to get a group of toddlers together since one of the beliefs in Conductive E. is the group connection. So our search for toddlers with motor delays in the Twin Cities area begins!
If you are a parent of a 1-3 year old with CP or other motor impairment, consider joining this new therapeutic group! Just send me a message here or at jbthayer07@hotmail.com
Now, off to google a book mentioned to me entitled Dina...
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