Friday, July 9, 2010

Update on King Roa

Computer issues.... it has been awhile since I wrote.  I missed my blogging therapy!!

There is not a whole lot new in the world for Rojo.  No miracles, no amazing milestones met.  But, our boy keeps working hard at walking in that gait trainer and going through his therapy routine at home with Mama.  We have had a short break in our therapy schedule due to the Birth to 2 staff summer vacations, and... I have to say it has been very nice.  Less people to answer to, less people to clean my house for! ;) 
We picked up a few more sessions at Courage Center with Andrea, PT and continue with our Conductive Ed and ABM/Craniosacral routine.  Bryan even gets Roa in the HBOT chamber 2-3 times a week.

Little things are happening for Roa that we are happy about.  1) He is liking a "roll over" game that we started with him last weekend.  Rolling over across the floor is much more exciting when Daddy, Elmo, and his puppy stuffed toy roll too! 
2) He is moving and shaking in the gait trainer!  He has taken a liking to walking down the driveway and out on to the street with Momma and continues for almost a block.... laughing and walking!  So awesome.
3) He is babbling more and has said, "Kitty", "Mow"(mowing the lawn with Daddy, his favorite task).  We think the HBOT really has alot to do with the increased vocalizations.
4) He is sleeping better!!!!!!!!!  Still wakes once in the night, and gets up at the crack of dawn for the day around 5:00am, but overall seems more comfortable at night.   Sad to say, we think it is the break from Birth to 2 therapy that has made this change.  Time to chat with the Laurie and Mary...

Roa has a great 4th of July with Bryan's side of the family in Grand Rapids, MN.  It was really nice to see him interacting with his active boy cousins and watch them play ball and run.  He wanted to get right out there with them!!  They did a nice job of including him and playing with him. 
It also was great that Bryan's family got to see Roa in his true form.  Giggly, on the go,.... typical 2 year old except for his motor delays.  We got many comments on how happy he is and how his temperment has changed.    It is hard for some people to get past the gait trainer, AFOs, etc and see that there is a little boy ready to play and explore in there!  He just needs some help getting to the toys or moving from spot to sopt.  This past weekend opened some eyes, we hope,  maybe erased some negative preceptions of Cerebral Palsy and subsided some fears. 

My belly is getting much bigger!  20 weeks now and life with Roa is getting a bit more difficult.  Thank goodness he likes moving in the gait trainer so much!  Momma can not bend over like I used to.  We are currently shopping for a Big Boy Bed for Roa and want to start that transition well before Baby T2 arrives.  We are also shopping around for a fish tank for the boy's bedside.  We hope that might make the jump to a regular bed go a bit smoother.  Our guy loves fish!

1 comment:

  1. It's so great that your family is growing! I'm so happy for you. When are you due? Your little boy is such a cutie and I know the frustration as we watch them try so hard to control their own bodies and watch the other children move with such ease. It's nice to be in contact with more and more moms who have similar experiences. Every time I start to worry that my son will not make that next milestone - he does. I bet your little sweetie will be rolling over in no time. He's lucky to have such a wonderful family =)


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