Got a new stander to try out for the summer delivered today. It is a "Sit to Stand" and Roa has been in it a couple times while at school and doesn't seem to mind being in it. Standers are used with children diagnosed with CP to help them bear weight and work on hip alignment. It is not always a fun choice of activity, especially for a kid like Roa who likes to go go go! But, we battle through it.
Stander time was thought to give me some relief from "Roa entertaining". Put him in the stander and you can clean or cook while he plays, the therapists say. Yeah, Right! Not with our boy. King Roa is possibly the most impatient, demanding child ever! I can not leave the room without an outburst from the King. Stander time is "Momma, sit right beside me and juggle time".
People say, let him cry and he will learn. Tell him you will be right back. Give him something to entertain him while you are gone.
I have tried it all and then some..... King Roa still cries, yells and demands. It is just who he is. Drives me INSANE at times, but it is life with Roa.
So, we work diligently at helping him increase the control of his hands and work on positioning in standers, chairs and floor. We look for toys he can easily activiate that also cognitively challenge him. Roa's brightness is a curse at times. His brain know what it wants to do and learn and explore. His little body holds him back.
So, Momma keeps juggling to keep the King happy. Housework and even bathroom time sometimes has to wait when King Roa demands.
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